There came unto him a woman having an alabaster box of very precious ointment, and poured it on his head, as he sat at meat.


Wednesday, September 20, 2017

#TeamCharlotte-Going Home

Charlotte Ann was released from the hospital on Tuesday, August 29, 2017-just 5 days after her open heart bypass surgery. 

She can't be lifted normally under her arms because that would hurt her chest area. She has to be handled very carefully by placing your hands under her little butt and lifting. That is a near impossibility for us oldies-especially since she has gained so much weight because of the steroids. In order to hold Charlotte, I have to sit down and Travis places her on my lap. As he picks her up, she curls over with her head into his chest.

On Saturday, Sept. 2, the home health care nurse came out to make sure Charlotte was getting her meds properly-the entry tube has to be scrubbed 30 seconds, let dry 30 seconds, pills put into liquid form, injected slowly [Erin and Travis take care of all this twice a day] and her environment clean. Everyone in the household has been put on notice to handy wipe their hands and to leave shoes at the door before coming into the room. A note is on the door to remind and a table with handy wipes is at the door, don't give her anything that hasn't been cleaned and don't be in her face.

Charlotte enjoys playing with the kids. Before she got sick she played outside with them and the little girls across the street. This is an octopus her great aunt Jackie [MamJack] crocheted for her in orange that stands for leukemia.

Her great uncle, Jeff, thought she might like shells he found while he was fishing and she loved them. He took special care to clean them thoroughly. 

Her doll house is one of her favorite things. 

She loves to paint. She did a lot of that in the activity room at the hospital and of course her side kick, Hannah, is always right there with her. 

and she is still getting special things. Mamaw Melinda brought  a Cloud Pet in that we have to learn how to use

We are all having to get used to a new normal of Charlotte Ann's fragility and keeping her environment safe for her. I just thank God that we still have her. We came near losing her twice in just a few weeks. 

Many thanks for all the prayers for her. 

God bless you
Carolyn Wainscott

Monday, August 28, 2017

#TeamCharlotte-Charlotte's Little Star Box For Her Special Things

Several weeks ago I bought a memory box to put things in for Charlotte to have when she gets older and to see what she has gone through. 

I chose this one since she is such a star- not what I had intended on getting but this is perfect.

Her Team Charlotte shirt is already in the box along with the special head band her great auntie, Jackie made for her. The little bear came today but Travis will take it to the hospital tomorrow for her to see. There will be copies of the #TeamCharlotte blogs. 

Here is the head band with the special orange ribbon both made by my sister Jackie. The ribbon has a piece of our mother's jewelry on it so Charlotte has something from her great, great grandmother. If Mom were still alive she would be one of Charlotte's most fierce prayer warriors. 

I take many, many photos and videos and they are being put on this flash drive that will be kept in her box that tells an almost daily story. 

There are things in her hospital room that will be placed in Her Little Star Box. 
like the card she was enjoying above

Many thanks for the many prayers, encouragements and well wishes for Charlotte and the rest of us. 

If you would like to send Charlotte a card that she can see and would be kept in this box for her you can pm me @ for her address. 

God bless you
Carolyn Wainscott

Saturday, August 26, 2017

#TeamCharlotte-Procedure Gone Wrong

Thursday, August 24, 2017
Charlotte was to go home after her port for future cancer treatments is installed at 1:40 p.m. It is a commonplace, every day procedure that is done many times a day. 

I got to the hospital early so I could spend some time with her before the procedure. We had a fun time blowing bubbles and she was in good spirits even though she couldn't have anything to eat or drink. Lots of her infectious giggles.

The transport team came for Charlotte. I take photos of just about everything and clicked this one as I walked behind. Charlotte has her kitty and her "Nannies"-her fave thin little blankets that she holds on to.

Her Mamaw Melinda [my daughter] and I went to the cafeteria to have a cup of coffee and wait-the port procedure was to only take 20 minutes to possibly 1 1/2 hr. 

After a time we went up to Charlotte's room to carry some of her stuff down to the car. Then we waited some more. Melinda and Travis texted a couple of times and then he texted that something had gone wrong-the drs. had just come in and talked with them. We had to find out where they were.

The wire of the port had somehow wrapped itself into her heart and they couldn't get it backed out without fear of doing damage. A heart specialist was being called in to see how to proceed.

They had been assured Charlotte was stable. 

It was decided for Charlotte to have open heart bypass surgery. While the doctor was telling them about the procedure I stood up to hear what she was saying but had to sit down. Our baby was going to have to have open heart surgery-how could this happen???
She was stable, being kept comfortable-one of the best doctors in the area had been called in. 

I lost all concept of time but it seemed forever. We were alerted when the operation was to start. Updates here and there. Information about where she would be taken after the surgery, when they could go in and see her. 

The waiting room filled up with Charlotte's family and friends. pastor Damon came in to pray with us and as we were praying one of the surgeons came in to give us great news that Charlotte was doing great and the surgery itself was over. The head surgeon would be in shortly to fill us in on the rest. 

The surgery went well and there should be no residual affects even though the wire had coiled itself into one of Charlotte's heart valves. I won't even pretend to give technical terms, I am trying to just convey what went on in a fashion I can understand. 

It had been a long, long day and after knowing Charlotte was ok, I was sent home with our good friend, Jennifer, leaving my car at the hospital. They must think this ol' 77 year old granny woman can't fight her way out of a paper bag sometimes but that night I probably could not have. I had to take this photo as I was leaving.

As soon as I get dressed I will be on my way to see this precious child. I hated to cop out yesterday but I could barely get myself across the floor and spent the day in my chair. She didn't need too much commotion around her.

Please keep our Charlotte in your prayers-thank you so much.

God bless you
Carolyn Wainscott 

Thursday, August 24, 2017

#TeamCharlotte-In Remission

On Friday, August 18, 2017 tests were run to see how Charlotte's treatments were working. We wouldn't get the results until Monday or Tuesday and it was a long wait. The last time we had to wait for her initial diagnosis the outcome wasn't good. That's when we found out that she has leukemia. So we wait.

We heard nothing Monday and were beginning to wonder if we would have her results on Tuesday. The doctors didn't come in until after 5 p.m. but they had great news. Charlotte is in remission!!!! Her treatment is working and she will probably being going home sometime later this week. Thank you, LORD!!!

and back to my tablet and my videos and my suckers Mamaw brought for me-no, you cannot have one

And the prayer of faith shall save the sick, and the Lord shall raise him up        James 5:15

God bless you and all of yours
Carolyn Wainscott

#TeamCharlotte-Steroids, Food & Mamaw Melinda

Steroids gave Charlotte a voracious appetite! She ate all her meals then snacked continuously till the next meal-rice cakes, potato chips, canned snacks.  

Charlotte knew she could count on Mamaw Melinda to bring her lots of goodies for a change from hospital fair and her regular chewies. She had her arms outreached as soon as she saw her Mamaw coming in the door baring Big Boys, onion rings, pizzas, special donuts, etc., etc., etc

Mamaw was sometimes her official food holder/secretary while she was busy on her tablet.

One night Mamaw even grilled corn and chicken-no one else got any corn.

The steroids were stopped on August 18, 2017 so Charlotte's appetite has slowed down somewhat and she is getting back to our Sunshine Girl-her laugh is contagious. 

Again, many thanks to all for your prayers for our baby girl and for all of us as we go through this journey with Charlotte. 

 Confess your faults one to another, and pray one for another, that ye may be healed. The effectual fervent prayer of a righteous man availeth much.     James 5:16 

God bless you
Carolyn Wainscott

Tuesday, August 22, 2017

#TeamCharlotte-Charlotte's Fave, The Playroom

In case you are new to #TeamCharlotte, Charlotte is in Cincinnati's Children's Hospital-being treated for leukemia since she was airlifted there on July 13, 2017. 

Charlotte enjoys going to the playroom. There are activities that help with her motor and social skills that are fun and entertaining. 

Children's has wonderful all round care for patients as well as their families. 

Many thanks for all your prayers for Charlotte. 

God bless you
Carolyn Wainscott

Sunday, August 20, 2017

#TeamCharlotte-Hair Cutting Time-August 2

By August 2 Charlotte had been on chemo for several weeks when the expected happened-her hair began to come out. It started aggravating her and she was pulling at it so it was decided that a hair cut was scheduled. Charlotte is suspect of everything so it wouldn't be easy.

I was going to be there and photo/video but didn't make it in time and no, it wasn't easy even though her Daddy let her shave his head first.

I guess everyone was too busy holding Charlotte for her haircut to take photos.

Another step in the cancer dance. I guess it was a good thing I wasn't there, Charlotte had a fit and I probably would have gone all to pieces and been no help at all.

Please keep her in your prayers. She had another test 2 days ago, 8/18/'17, to check her progress. We will have the results Monday or Tuesday. The waiting for news is hard-why can't we just know immediately?

For he shall give his angels charge over thee, to keep thee in all thy ways.  Psalms 91:11 

God bless you and keep you in all your ways.
Carolyn Wainscott