There came unto him a woman having an alabaster box of very precious ointment, and poured it on his head, as he sat at meat.

MATTHEW 26:7



Thursday, October 5, 2017

OCTOBER IS PREGNANCY & INFANT LOSS AWARENESS MONTH


Sweet thought for those of us who have babies who were born to heaven. 


It brought to mind poems I had written years ago so I pulled them out of my notebook. My notes on the poem tell me the first was written on March 26, 1999. I stopped to write the poem as I was getting ready to go to the hospital to be with my niece, Debbie, for the birth of her first baby. I was joining the watch with my sister, Debbie's mother, and her sister, Cathy. 

The previous four months had been dreadful. Debbie had been told  this baby would not survive. Many, many prayers had been said. I guess this prayer was another plea.

--The Baby With No Hope--

The doctor paused outside the door,
for words she had to grope.
To tell the young expectant mother  
that her baby had no hope.
The child she'd long awaited
kept a smile on her sweet face,
that changed to a look of unbelief
and then, "Maybe you've made a mistake?"
A second and third opinion
confirmed that she'd have to cope
and face the future without
this baby with no hope.
The baby's nursery looked like
a piece of heaven back at home,
Mom and Dad and family waiting
with lots of love to be shone.
We went to our Father,
the source of all our hope
and told Him we were so broken hearted
and how we love this baby so!
You created this world with your Word
and raised Lazarus from the dead.
With just a Breath, You can heal this child
and give it hope and life instead.

Ross Burnett was born twice on March 27, 1999-once to earth and once to Heaven

Then over a month later on May 5 these words came:

NO HOPE?

And life He gave but with so much more worth.
For this child was not to be bound upon this earth.
The angels born him quickly back to whence he'd come.
Back to be with Jesus, in His safe and loving arms.
Back with others like him to be kept on Jesus knee,
'Cause Jesus can take so much better care than even we.
Back to be sung to sleep by angels, play peek-a-boo with God,
catch fly balls hit by Jesus, play tag on holy sod,
fly kites so high they touch the stars, do everything you'd want them to.
For those of us whose child is there, Jesus keeps them for me and you.
We don' t know what life here for that child would be,
but we do know that God does give life abundantly.
And how much more abundant than to be with Him from the start, 
and not have go trudge through life's hurts and broken heart.
How selfish 'twould be on our part to keep that child bound here
than lose him to the freedom of heaven to save ourselves a tear. 
For, in time, we will be greeted with "Momma, Daddy, I'm so glad you're finally home!
Come over here and see what Jesus and I have done!"
Then that child we missed so much will take us by the hand
and those years will just fade away as he shows us that heavenly land.
We'll tour all his grand works of art that were saved for us to see
and won't have missed a thing because we'll have all eternity. 
So when we're told earth's bad news with which we'll have to cope
we just have to keep in mind that heaven is our hope.

On New Year's Eve, 1959, my baby, Larry, was also born to Heaven. I never got to see him or hold him but will one day. 

God bless you
Carolyn Wainscott

Wednesday, September 27, 2017

#TeamCharlotte-Being Home

On July 13, 2017 Charlotte Ann was air lifted to Children's Hospital in Cincinnati and her journey through leukemia began. For more background information see previous #TeamCharlotte articles. 

Charlotte is a busy little bee, always has been. While in the hospital she watched a lot of "Cat In The Hat" because she just didn't feel like moving around but as she began feeling better the activities room was her fave place. She did  a lot of painting and playing with playdough so that has continued here at home as she gains her strength and mobility back. 

In the last couple of weeks she is walking. Where before she always had to run ahead, now she wants to hold a finger for stability and is taking steps without holding onto things. 

She has to be checked weekly at the hospital but minimal meds. [I don't even pretend to keep up with that-my job as her great, grandmother is to hold/love/enjoy/paint/playdough/read]. 

When she is having a great time she has a squeal and infectious laugh that is coming back. You can know how good that is to hear. 

We read her cards from Her Treasure Box. The bottom photo is from the little girls across the street that she plays with
  


She and Hannah baking cookies [yep-that is just the way my girls helped-sitting right up on the counter]
Playdough time
 Charlotte won't wear anything on her head so I thought if she painted her own visor she might-all the kids painted their own-it's a start-now if I can just get her to wear the beautiful feathered head bands I ordered! lol
 Painting with daddy

She received a package from HOPPS, Helping Our Pediatric Patients Smile, with lots of interesting things to do. September is Childhood Cancer Awareness month-and Charlotte did smile-especially when she discovered a chapstick in the box-the child is wierd-kinda takes after her great, grandmother





This has been a harrowing time and Charlotte is leading us through her journey. 

a little child shall lead them.
Isaiah 11:6

Please keep Charlotte and all the other children who are battling cancer in your prayers. Thank you

God bless you
Carolyn Wainscott

Wednesday, September 20, 2017

#TeamCharlotte-Going Home

Charlotte Ann was released from the hospital on Tuesday, August 29, 2017-just 5 days after her open heart bypass surgery. 

She can't be lifted normally under her arms because that would hurt her chest area. She has to be handled very carefully by placing your hands under her little butt and lifting. That is a near impossibility for us oldies-especially since she has gained so much weight because of the steroids. In order to hold Charlotte, I have to sit down and Travis places her on my lap. As he picks her up, she curls over with her head into his chest.

On Saturday, Sept. 2, the home health care nurse came out to make sure Charlotte was getting her meds properly-the entry tube has to be scrubbed 30 seconds, let dry 30 seconds, pills put into liquid form, injected slowly [Erin and Travis take care of all this twice a day] and her environment clean. Everyone in the household has been put on notice to handy wipe their hands and to leave shoes at the door before coming into the room. A note is on the door to remind and a table with handy wipes is at the door, don't give her anything that hasn't been cleaned and don't be in her face.

Charlotte enjoys playing with the kids. Before she got sick she played outside with them and the little girls across the street. This is an octopus her great aunt Jackie [MamJack] crocheted for her in orange that stands for leukemia.

Her great uncle, Jeff, thought she might like shells he found while he was fishing and she loved them. He took special care to clean them thoroughly. 

Her doll house is one of her favorite things. 




She loves to paint. She did a lot of that in the activity room at the hospital and of course her side kick, Hannah, is always right there with her. 



and she is still getting special things. Mamaw Melinda brought  a Cloud Pet in that we have to learn how to use

We are all having to get used to a new normal of Charlotte Ann's fragility and keeping her environment safe for her. I just thank God that we still have her. We came near losing her twice in just a few weeks. 

Many thanks for all the prayers for her. 

God bless you
Carolyn Wainscott

Monday, August 28, 2017

#TeamCharlotte-Charlotte's Little Star Box For Her Special Things

Several weeks ago I bought a memory box to put things in for Charlotte to have when she gets older and to see what she has gone through. 

I chose this one since she is such a star- not what I had intended on getting but this is perfect.

Her Team Charlotte shirt is already in the box along with the special head band her great auntie, Jackie made for her. The little bear came today but Travis will take it to the hospital tomorrow for her to see. There will be copies of the #TeamCharlotte blogs. 


Here is the head band with the special orange ribbon both made by my sister Jackie. The ribbon has a piece of our mother's jewelry on it so Charlotte has something from her great, great grandmother. If Mom were still alive she would be one of Charlotte's most fierce prayer warriors. 


I take many, many photos and videos and they are being put on this flash drive that will be kept in her box that tells an almost daily story. 

There are things in her hospital room that will be placed in Her Little Star Box. 
  
like the card she was enjoying above

Many thanks for the many prayers, encouragements and well wishes for Charlotte and the rest of us. 

If you would like to send Charlotte a card that she can see and would be kept in this box for her you can pm me @ quiltngrin@hotmail.com for her address. 

God bless you
Carolyn Wainscott


Saturday, August 26, 2017

#TeamCharlotte-Procedure Gone Wrong

Thursday, August 24, 2017
Charlotte was to go home after her port for future cancer treatments is installed at 1:40 p.m. It is a commonplace, every day procedure that is done many times a day. 

I got to the hospital early so I could spend some time with her before the procedure. We had a fun time blowing bubbles and she was in good spirits even though she couldn't have anything to eat or drink. Lots of her infectious giggles.

The transport team came for Charlotte. I take photos of just about everything and clicked this one as I walked behind. Charlotte has her kitty and her "Nannies"-her fave thin little blankets that she holds on to.

Her Mamaw Melinda [my daughter] and I went to the cafeteria to have a cup of coffee and wait-the port procedure was to only take 20 minutes to possibly 1 1/2 hr. 

After a time we went up to Charlotte's room to carry some of her stuff down to the car. Then we waited some more. Melinda and Travis texted a couple of times and then he texted that something had gone wrong-the drs. had just come in and talked with them. We had to find out where they were.

The wire of the port had somehow wrapped itself into her heart and they couldn't get it backed out without fear of doing damage. A heart specialist was being called in to see how to proceed.

They had been assured Charlotte was stable. 

It was decided for Charlotte to have open heart bypass surgery. While the doctor was telling them about the procedure I stood up to hear what she was saying but had to sit down. Our baby was going to have to have open heart surgery-how could this happen???
She was stable, being kept comfortable-one of the best doctors in the area had been called in. 

I lost all concept of time but it seemed forever. We were alerted when the operation was to start. Updates here and there. Information about where she would be taken after the surgery, when they could go in and see her. 

The waiting room filled up with Charlotte's family and friends. pastor Damon came in to pray with us and as we were praying one of the surgeons came in to give us great news that Charlotte was doing great and the surgery itself was over. The head surgeon would be in shortly to fill us in on the rest. 

The surgery went well and there should be no residual affects even though the wire had coiled itself into one of Charlotte's heart valves. I won't even pretend to give technical terms, I am trying to just convey what went on in a fashion I can understand. 

It had been a long, long day and after knowing Charlotte was ok, I was sent home with our good friend, Jennifer, leaving my car at the hospital. They must think this ol' 77 year old granny woman can't fight her way out of a paper bag sometimes but that night I probably could not have. I had to take this photo as I was leaving.

As soon as I get dressed I will be on my way to see this precious child. I hated to cop out yesterday but I could barely get myself across the floor and spent the day in my chair. She didn't need too much commotion around her.

Please keep our Charlotte in your prayers-thank you so much.

God bless you
Carolyn Wainscott 

Thursday, August 24, 2017

#TeamCharlotte-In Remission

On Friday, August 18, 2017 tests were run to see how Charlotte's treatments were working. We wouldn't get the results until Monday or Tuesday and it was a long wait. The last time we had to wait for her initial diagnosis the outcome wasn't good. That's when we found out that she has leukemia. So we wait.

We heard nothing Monday and were beginning to wonder if we would have her results on Tuesday. The doctors didn't come in until after 5 p.m. but they had great news. Charlotte is in remission!!!! Her treatment is working and she will probably being going home sometime later this week. Thank you, LORD!!!




and back to my tablet and my videos and my suckers Mamaw brought for me-no, you cannot have one


And the prayer of faith shall save the sick, and the Lord shall raise him up        James 5:15

God bless you and all of yours
Carolyn Wainscott

#TeamCharlotte-Steroids, Food & Mamaw Melinda

Steroids gave Charlotte a voracious appetite! She ate all her meals then snacked continuously till the next meal-rice cakes, potato chips, canned snacks.  

Charlotte knew she could count on Mamaw Melinda to bring her lots of goodies for a change from hospital fair and her regular chewies. She had her arms outreached as soon as she saw her Mamaw coming in the door baring Big Boys, onion rings, pizzas, special donuts, etc., etc., etc





Mamaw was sometimes her official food holder/secretary while she was busy on her tablet.





One night Mamaw even grilled corn and chicken-no one else got any corn.


The steroids were stopped on August 18, 2017 so Charlotte's appetite has slowed down somewhat and she is getting back to our Sunshine Girl-her laugh is contagious. 

Again, many thanks to all for your prayers for our baby girl and for all of us as we go through this journey with Charlotte. 

 Confess your faults one to another, and pray one for another, that ye may be healed. The effectual fervent prayer of a righteous man availeth much.     James 5:16 

God bless you
Carolyn Wainscott